is a federally funded project whose primary mission is to provide
information on assistive technology and rehabilitation equipment
available from domestic and international sources to consumers,
organizations, professionals, and caregivers within the United States.
Travel Source is dedicated to aiding travelers with disabilities
and the mature traveler. We accomplish this by having practical
information needed to go cross-town or around the world. The database
has not only accessible accommodations but also everything to make
a trip fun and exciting.
Environments Center, Inc. addresses the environmental issues
that confront people with disabilities. We promote accessibility
through education programs, technical assistance, training, consulting,
publications and design advocacy.
Inc. is a nonprofit corporation funded by the United States
Congress to protect and advocate for the legal rights of people
with disabilities in Texas. It is not a part of state or local government.
It has offices throughout the State of Texas, and a Board of Directors
appointed mainly by disability organizations.
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for Children of New York, Inc. AFC works on behalf of children
from infancy to age 21 who are at greatest risk for school-based
discrimination or academic failure. These include children with
disabilities, ethnic minorities, immigrants, homeless children,
foster care children, limited English proficient children and those
living in poverty.
Head Injury Foundation
The Alabama Head Injury Foundation (AHIF) was founded by professionals
and families in 1983 to increase public awareness of Traumatic Brain
Injury (TBI) and to stimulate the development of supportive services.
Today, AHIF is the largest state brain injury association in the
nation with model programs and statewide services.
Graham Bell Association for the Deaf and Hard of Hearing (AG
Bell) is an international membership organization comprised of parents
of children who are deaf and hard of hearing, adults with hearing
loss, and professionals who serve children with hearing loss.
Family Resources Using their e-collaboration system™, All Family
Resources provides a wide-range of quality resources that are easily
available to both individuals and organizations, for the purpose
of enriching the lives of all families.
for Parental Involvement in Education ALLPIE is a nonprofit
organization that assists and encourages parental involvement in
education, wherever that education takes place: in public school,
in private school, or at home. AllPIE offers a newsletter (Options
in Learning), annual conferences and retreats, a book catalog, workshops,
lending library and more.
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for Technology Access Our mission is to connect children and
adults with disabilities to technology tools. Today's technology
is redefining what it means to have a disability.
Academy of Child and Adolescent Psychiatry This site is designed
to serve both AACAP Members, and Parents and Families. Information
is provided as a public service to aid in the understanding and
treatment of the developmental, behavioral, and mental disorders,
which affect an estimated 7 to 12 million children and adolescents
at any given time in the United States.
The mission of the American
Academy of Pediatrics is to attain optimal physical, mental
and social health and well being for all infants, children, adolescents
and young adults. To this purpose, the AAP and its members dedicate
their efforts and resources.
Association on Mental Retardation (AAMR)
Since 1876, AAMR has been providing leadership in
the field of mental retardation. AAMR is the oldest and largest
interdisciplinary organization of professionals (and others) concerned
about mental retardation and related disabilities. Over 9,500 members
in the U.S. and 55 other countries have chosen AAMR as their association.
AAMR promotes global development and dissemination of progressive
policies, sound research, effective practices, and universal human
rights for people with intellectual disabilities.
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Brain Tumor Association (ABTA) was founded in 1973 by two families
who lost children to brain tumors. They vowed to find answers through
research. Today, ABTA is a global organization making major strides
by funding brain tumor research and providing the information patients
need to make educated decisions about their healthcare.
Academy for Cerebral Palsy and Developmental Medicine is a multidisciplinary
scientific society devoted to the study of cerebral palsy and other
childhood onset disabilities, to promoting professional education
for the treatment and management of these conditions, and to improving
the quality of life for people with these disabilities.
Association of People with Disabilities A non-profit, non-partisan,
cross-disability organization whose goals are unity, leadership
Society for Deaf Children ASDC is a national, independent non-profit
organization whose purpose is providing support, encouragement,
and information to families raising children who are deaf or hard
Speech-Language-Hearing Association ASHA is the professional,
scientific, and credentialing association for more than 98,000 audiologists,
speech-language pathologists, and speech, language, and hearing
Spinal Injury Association The mission of the association is
to: promote and establish standards of excellence for all aspects
of health care of individuals with spinal cord injury; provide education;
improve care; foster research which aims at preventing spinal cord
injury, and finding a cure for both acute and chronic SCI, and to
facilitate communication between members and other physicians, other
health care professionals, researchers and consumers.
Baby Can Child and Family Resource Center Serving families in
Travis and Williamson Counties, Texas at risk of having a child
with developmental delays or who are caring for a child with disabilities
or critical health care needs.
website is sponsored by a new organization, the Childhood Apraxia
of Speech Association of North America (CASANA). The site is designed
to provide accessible and understandable information regarding Childhood
Apraxia of Speech (also called Developmental Apraxia of Speech,
Developmental Verbal Dyspraxia, and other terms).
The ARC of
Bergen Passaic Counties, Inc., is a private not-for profit organization
of families, self advocates, professionals and community members
dedicated to assisting individuals with developmental disabilities
and their families. The Arc is a membership organization affiliated
with The Arc of New Jersey and The Arc US.
Arc of Colorado
The Arc of Colorado advocates with others to create the conditions
under which all people with developmental disabilities experience
opportunities to develop competency and to make choices, to have
good relationships with family members and friends, to have respect
and dignity, and to be full participants in all community living.
Arc of New Jersey
The Arc of New Jersey is a statewide, private, nonprofit advocacy
organization founded in 1947. Our mission is to promote and advocate
for the welfare of persons whose primary disability is mental retardation,
and to foster the development of appropriate programs to enhance
their quality of life.
Arc of Maryland
The Arc of Maryland stands for dignity and respect for all persons,
regardless of their capabilities or needs for support. It exists
for the purpose of advocating for people with mental retardation
and their families; and empowering self-advocates.
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Our mission and vision: Arc Minnesota is a private, non-profit,
statewide voluntary organization that is dedicated to ensuring the
full participation in their communities of people with developmental
disabilities and improving their lives and the lives of their families
by: Promoting a system of support and self-sufficiency; Advocating
for basic civil rights; Increasing public awareness; Improving public
policies; Providing information and referral sources; and Developing
opportunities and services, enabling people to become contributing
members of their communities.
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Arc of Mississippi
The Arc serves any persons with developmental disabilities, family
members of persons with disabilities, professionals and interested
citizens. In short, anyone who could benefit from the services
of The Arc can be served.
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Arc of North Carolina
We are committed to securing for all people with mental retardation
and other developmental disabilities the opportunity to choose and
realize their goals of where and how they learn, live, work and
Arc of Texas
Our Mission The Arc of Texas is the oldest and largest nonprofit,
volunteer organization in the state committed to expanding opportunities
for people with mental retardation and other developmental disabilities
to be included in their communities. The Arc supports families,
public policies, provides
training programs, and builds
a statewide network of advocates.
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ARC of the United States
works through education, research and advocacy to improve the quality
of life for children and adults with mental retardation and their
families and works to prevent both the causes and the effects of
ARC of Utah Our
mission statement is "The Arc of Utah advocates for people
with mental retardation and related disabilities and their families
through support, outreach, education and legislation."
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The mission of the Asperger
Syndrome Coalition of the United States, Inc. (ASC-U.S.) is
to enable individuals with AS and related disorders to realize their
potential. Families, professionals and affected individuals work
together on a national, regional and local level to: strengthen
grassroots efforts that provide support and reliable information
and bring people together to create a national voice, advocating
for research, education and public awareness.
Rehabilitation Counseling Specialists, Inc.
Associated Rehabilitation Counseling Specialists is a non-profit
501(c)(3) charitable corporation. Its purpose is to provide cost-free
counseling to persons with disabilities as well as family and friends.
We have joined the Internet so that we can make this free service
available to Internet users.
Association of Schools and Agencies for the Handicapped ASAH
is a professional organization of private schools and agencies in
New Jersey which provides highly specialized services to more than
10,000 children and adult with special needs. Some of our goals
are to insure high standards in all New Jersey private schools and
agencies serving individuals with special needs and referral for
anyone seeking appropriate educational placement of individuals
with special needs.
Information Network, Inc. is a non-profit volunteer organization.
We offer support and information to families of children with ADD,
adults with ADD and professionals through a network of AD-IN chapters.
mission of the Autism
Society of America is to promote lifelong access and opportunities
for persons within the autism spectrum and their families, to be
fully included, participating members of their communities through
advocacy, public awareness, education, and research related to autism.
purpose of the Autistics.org
project is to connect persons with autism with the services we need
to live whole and happy lives. The immediate goal of autistics.org
is to build a global database of information and resources by and
for persons on the autistic spectrum.
is support group for individuals, families, and medical professionals
interested in Arthrogryposis Multiplex Congenita (AMC). AMC is a
congenital condition characterized by multiple joint contractures.
Center on Families and Disability Our mission is to enhance
the quality of life of families who have children with disabilities.
We investigate how the core concepts of disability policy affect
professional practice; and, in turn, how practice, especially in
the form of partnerships among families, professionals, and agencies,
affects families’ quality of life.
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mission of Best
Buddies International is to enhance the lives of people with
mental retardation by providing opportunities for one-to-one friendships
and integrated employment.
Defect Research for Children, Inc.
BDRC is a non-profit organization that provides parents and
expectant parents with information about birth defects and support
services for their children. We have a parent-matching program
that links families who have children with similar birth defects.
BDRC also sponsors the national Birth Defect Registry, a research
project that studies associations between birth defects and exposures
to radiation, medication, alcohol, smoking, chemicals, pesticides,
lead, mercury, dioxin and other environmental toxins.
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The mission of the Brain
Injury Association, Inc. is to create a better future through
brain injury prevention, research, education and advocacy.
Injury Association of Maryland, Inc.
Our mission is to create a better future through brain injury prevention,
research, education and advocacy.
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is a not-for-profit foundation founded in 1992 by the parents and
friends of children affected by Canavan disease, a degenerative
childhood condition. The only organization exclusively dedicated
to the prevention of the disease, its mission is to support research,
to educate the medical community and to provide information for
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Development Institute CDI was founded by Robert Myers, Ph.D.
who is a Clinical Child Psychologist with 20 years of experience
working with children, adolescents, families and parents. Dr. Myers
has developed a number of programs that have proven to be successful
in helping children with various learning problems.
and Adults with Attention-Deficit/Hyperactivity Disorder CHADD
is a national non-profit organization representing children and
adults with attention-deficit/hyperactivity disorder (AD/HD). Founded
in 1987 by a group of concerned parents, CHADD works to improve
the lives of people with AD/HD through education, advocacy and support.
with Disabilities Web site offers families, service providers,
and other interested individuals information about advocacy, education,
employment, health, housing, recreation, technical assistance, and
transportation covering a broad array of developmental, physical,
and emotional disabilities.
Apraxia Network is a Non-Profit Organization, a partnership
of families and professionals working together to provide support,
resources and information to those who care for children that are
late talkers, or those diagnosed with apraxia.
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The Children's Health
Council (CHC) has served the developmental needs of children
and families in the community for nearly 50 years. Founded in 1953
by Dr. Esther Clark, Palo Alto's first pediatrician, the CHC provides
the highest quality mental health, special education, and developmental
services for children and adolescents.
Children’s Medical Research Institute (CMRI) was founded in
1958 to perform scientific research with a commitment to better
treat, and where possible, prevent childhood illness and disability
so that all concerned can have a better quality of life.
(CMS) is the Arkansas Title V program for children with special
health care needs. CMS serves families with disabled and chronically
ill children from birth to age 18 (and up to age 21 if funds are
available). The dedicated, caring staff of CMS is vitally interested
in providing to these families services that they need to care for
their children and keep the families intact.
Alliance to Uphold Special Education CAUSE shall provide a collaborative
forum where consumers and providers can actively support an individualized,
free appropraite public education (FAPE) that enables all students
to maximize their options in the world community. Our priority is
the protection of the rights of students with disabilities.
is a joint venture of two Washington, D.C. area firms with expertise
in communicating with Congress.
Parent Advocacy Center, Inc. (CPAC) is a statewide nonprofit
organization that offers information and support to families of
children with any disability or chronic illness, age birth through
The Council for Exceptional
Children (CEC) is the largest international professional organization
dedicated to improving educational outcomes for individuals with
exceptionalities, students with disabilities, and/or the gifted.
Stairs, Inc. Our purpose in all activities is to promote healthy,
enriching lives for children and their families. As a service agency,
Crystal Stairs is unique in its merger of direct childcare service
with research and advocacy. The staff of Crystal Stairs is professional,
multi-ethnic, bilingual and capable, possessing many years of experience
in childcare and related fields.
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of Utah, Inc. (DSU) we believe that individuals with mental
retardation, developmental disabilities or mental illness have the
same rights, desires, and possibilities as all citizens. Through
our several different programs we seek to provide community integration
on a very personal level, as well as, excellent opportunities for
personal growth and success.
Policy Consortium The Consortium is an independent group of
statewide advocacy organizations working for progressive public
policy on behalf of Texans with disabilities.
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Resources, Inc. is a nonprofit 501(c)(3) organization established
to promote and improve awareness, availability and accessibility
of information that can help people with disabilities live, learn,
love, work and play independently.
The Presidential Task Force on Employment of Adults with Disabilities
created http://www.disAbility.gov to provide one-stop online access
to resources, services, and information available throughout the
of Specialized Care for Children (DSCC)
DSCC provides care coordination for families and children with special
health care needs. It helps children with disabilities, and those
who have conditions which may lead to disabilities, grow and develop
to the full extent of their abilities.
TEACCH – Treatment and Education of Autistic and Related Communication
Handicapped Children Located in the Department of Psychiatry,
School of Medicine, at the University of North Carolina at Chapel
Hill, Division TEACCH, was the first statewide, comprehensive community-based
program dedicated to improving the understanding and services for
autistic and communication handicapped children and their families.
Syndrome World Wide Web Page This is the original World Wide
Web site composed of contributions from experienced professionals
and knowledgeable parents who are subscribers to the Down Syndrome
listserv and newsgroup, by the parents of a wonderful son who was
diagnosed with Down Syndrome at birth in 1993.
Tennessee Technology Access Center is a nonprofit organization
dedicated to helping people with disabilities reach their potential
for learning, working, speaking and living through the use of assistive
technology. ETTAC works with people of all ages and with all disabilities,
as well as with parents, children, adults, schools, businesses and
health care providers. ETTAC provides information, performs individual
evaluations, presents workshops and inservice trainings, and manages
a loaner program of assistive devices and toys.
empowers people with disabilities to achieve their goals (in work,
home, school and play) in harmony with the community. Enable provides
assessment, instruction, therapy and support for children and adults
with disabilities and their families.
The Epilepsy Foundation
of America is a national, charitable organization, founded in
1968 as the Epilepsy Foundation of America. The only such organization
wholly dedicated to the welfare of people with epilepsy, our mission
is simple: to work for children and adults affected by seizures
through research, education, advocacy and service.
Foundation of Long Island
was founded in 1953 by a group of parents who were determined to
see their children lead productive, satisfying lives. Today, the
Foundation provides education, counseling and residential care to
Long Island residents with epilepsy and related conditions.
Epilepsy Foundation of Southeast Texas
is a non-profit organization founded in 1983 to improve the lives
of the almost 100,000 adults and children with epilepsy in the 31
counties of southeast Texas. The Children Services Program provids
families of children with epilepsy a wide variety of educational,
recreational, support and advocacy services.
Foundation of Rochester and Syracuse Regions
is the agency that helps individuals and families affected by epilepsy
and related neurological impairments to understand, manage, and
cope with their disorders by providing education, advocacy and services.
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Parent Magazine provides information, support, ideas, encouragement
and outreach for parents and families of children with disabilities
and the professionals who work with them.
Eyes of Hope Foundation
is a nonprofit organization devoted to finding a cure for Spinal
Muscular Atrophy (SMA I), the number one inherited cause of infant
death. The initial goal for Eyes of Hope is to build national public
awareness of SMA and to help accelerate the funds raised for SMA
research. By working closely with all of the existing SMA fundraising
groups, The Eyes of Hope plans to maximize the results by initiating
collective marketing and public awareness campaigns.
The Families and Advocate
Partnership for Education is a new project that aims to inform
and educate families and advocates about the Individuals with Disabilities
Education Act of 1997 (IDEA 97). The Partnership helps to ensure
that the changes made in IDEA are understood by families and advocates
and are put into practice at local and state levels.
for Early Autism Treatment is a non-profit organization of parents
and professionals, designed to help families with children who have
received the diagnosis of Autism or Pervasive Developmental Disorder
(PDD NOS). It offers a network of support where families can meet
each other and discuss issues surrounding autism and treatment options.
of Spinal Muscular Atrophy is the largest international organization
dedicated solely to: Eradicating spinal muscular atrophy (SMA) by
promoting and supporting research; Helping families cope with SMA
through informational programs and support Educating the public
and professional community about SMA.
Together Having "been there" we are dedicated to assisting
other families in getting the information and support they need
to help their child with a disability or developmental delay develop
to his/her fullest potential.
Working Together This comprehensive web site was developed by
parents to help meet your needs. This site contains information
and resources not only for autism, but special needs relating to
Network on Disabilities of Florida, Inc. We are a statewide alliance of individuals
with disabilities, special needs, or at-risk and their families.
Our mission is to provide family-driven support, education, information,
Village is a global community that integrates information, resources,
and communication opportunities on the Internet for persons with
cognitive and other disabilities, for their families, and for those
that provide them services and support.
Voices Created by families from throughout the United States
who have children with special health needs. A diverse group, representing
a wide variety of children, health conditions, families, and communities.
The mission of the Fathers
Network is to celebrate and support fathers and families raising
children with special health care needs and developmental disabilities.
The Federation for Children
with Special Needs is a center for parents and parent organizations
to work together on behalf of children with special needs and their
families. We can help! Organized in 1975 as a coalition of parent
groups representing children with a variety of disabilities, the
Federation operates a Parent Center, which offers a variety of services
to parents, parent groups, and others who are concerned with children
with special needs.
Inc. The Internet portal where the entire disability community
can access reliable services and products, connect with peer support,
and keep up with disability-related news and information all day,
Larlham Foundation HLF is a private, non-profit agency serving
children and young adults with profound mental retardation and developmental
disabilities. Established in 1961, the Foundation has expanded from
its residential main campus in Mantua, Ohio to provide community
care throughout the northeast corner of the state.
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Injury Hotline This site, headinjury.com, is a dynamic, interactive,
self-directed learning center. It is designed to empower visitors
to become highly informed, highly involved, self-advocates. Head
Injury Hotline provides information on traumatic brain injury and
the professionals treating it. It enables visitors to find the help
they need -- including self-help-- and it empowers them to make
intelligent decisions about such help.
Children's Rehabilitation Hospital
provides Acute, Subacute and Outpatient Rehabilitation services
for children and adolescents from birth to twenty-one years of age.
Our interdisciplinary team of highly respected clinicians recognizes
that each child requires an individualized treatment plan based
on that child's specific medical, developmental, cultural and educational
Project was designed to reach, inform, assist and motivate parents
to ensure that their disabled children receive appropriate help
and receive it as early as possible, thereby giving them a much
greater chance of a healthy, happy life. We find that our work especially
involved families caring for someone with an Autistic Spectrum Disorder
A place where people affected by disabilities can take advantage
of the community building power of the Internet. A one-stop resource
for information, guidance, conversation and companionship.
Parents Unlimited, Inc. IPUL, Inc. is a statewide organization
whose membership consists of parents, parent groups, and professionals
devoted to achieving the ultimate potential in each person. IPUL
was founded by parents of children with disabilities, for parents
of children with disabilities.
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Provides parents, families, and service providers in Indiana with
the information and training necessary to help assure effective
educational programs and appropriate services for children and young
adults with disabilities.
Indiana Parent Information Network, Inc. is a not-for-profit
organization where parents, professionals and volunteers work together
to support children with special needs. Our uniqueness comes from
the fact that we are family-directed. The majority of our Board
of Directors and staff are parents of children with disabilities
and chronic illnesses.
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Institute for Child Health
Policy, a state-wide Institution of Florida's State University
System, was established in October 1986. The Institute has headquarters
at the University of
Florida, in Gainesville and affiliates at the University of South Florida, Florida State University and the University of Miami. The Institute
for Child Health Policy has focused its attention on children in
managed care with special a emphasis on children with special health
for Community Inclusion ICI supports the rights of children
and adults with disabilities to participate in all aspects of the
community. As practitioners, researchers, and teachers, we form
partnerships with individuals, families and communities. Together
we advocate for personal choice, self-determination, and social
and economic justice.
Rett Syndrome Association The mission of the IRSA is: to support
and encourage medical research to determine the cause and find a
cure for Rett syndrome, to increase public awareness of Rett syndrome,
and to provide informational and emotional support to families of
children with Rett syndrome.
Special Education Resources ISER is a nationwide directory of
professionals who serve the learning disabilities and special education
communities. We help parents and caregivers find local special education
professionals to help with learning disabilities and attention deficit
disorder assessment, therapy, advocacy, and other special needs.
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Autism Training Center Our mission to enhance supports for persons
with autism by providing information and technical assistance to
families and service providers across Kentucky.
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Inc. Our mission is to provide all children, with priority attention
to disabled and special kids, readily accessible and affordable
resources and tools to help them attain their maximum level of personal
achievement, and to enjoy the highest quality of life experience
on the Block, Inc. provides educational puppet programs which
enlighten children on the issues of disability awareness, medical-educational
differences, and social concerns. Kids on the Block has a strong
commitment to provide communities with programs that address children's
questions, concerns and needs in a lively and entertaining manner.
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Together, Inc. Our mission is to promote inclusive communities
and to provide helpful information and resources to enhance the
quality of life for children and adults with disabilities, and communities
as a whole.
is dedicated to providing a free, safe, and happy interactive environment
for young people receiving health services in the New York metropolitan
area, so that they can communicate with one another and with parents,
friends, doctors, nurses, and special guests.
This website is aimed at parents of children with special needs,
child advocates, and any others who desire to; learn about education
of children with special needs in the least restrictive environment
appropriate for them ("LRE"); contact not-for-profit organizations
that promote LRE; link to informative websites on this topic.
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Island Speech-Language-Hearing Association (LISHA)We
are an organization of approximately 1,000 speech-language pathologists
and audiologists on Long Island, N.Y. who are dedicated to sharing
ideas, discussing professional issues, disseminating information
and evaluating trends. We are proud of LISHA's long-standing commitment
to professional growth and community service.
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Niños Services, Inc. is a bilingual agency serving the developmental
needs of Spanish and English speaking young children and their families.
We specialize in home-based evaluations and treatment. Staff are
experienced bilingual clinicians who pride themselves in providing
quality services. We serve all communities and clients from
all backgrounds in New York City and Westchester county.
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Consumer Information and Technology Training Exchange
Maine CITE is a statewide project designed to help make assistive
and universally designed technology more available to Maine children
and adults who have disabilities.
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Parent Federation We provide information about: specific disabilities,
parenting issues, education, services, support groups and other
resources available to assist families and professionals within
the home, school and community.
Assistive Technology Partnership (MATP) is funded under the
Technology-Related Assistance to Individuals with Disabilities Act
(Tech Act), through the National Institute on Disability and Rehabilitation
Research, U.S. Department of Education. The purpose of the MATP
is to increase access to assistive technology for people of all
ages and all disabilities through a variety of consumer-focused
Citizens for Children (MCC) was founded in 1959 by Dr. Martha
May Eliot, an internationally recognized pediatrician and chief
of the US Children's Bureau (1951 - 1956). We are a non-profit statewide
child advocacy organization, whose mission is to improve the lives
of the state's most vulnerable children through advocacy by concerned
was founded in 1983 to support parents in meeting the unique and
complicated tasks that are part of living with and raising a child
with a disability. We offer emotional support, information on topics
about disabilities, referral to appropriate services and workshops
to provide parents with the skills they need to guide their children
National Parent to Parent Network is a national organization
for parents or care providers of a child with any disability, rare
or not so rare disorder, chromosomal abnormality or health condition.
MUMS' main purpose is to provide support to parents in the form
of a networking system that matches them with other parents whose
children have the same or similar condition.
Association for Down Syndrome (NADS), a not-for-profit organization,
was founded in Chicago in 1961 by parents of children with Down
syndrome who felt a need to create a better environment and bring
about understanding and acceptance of people with Down syndrome.
Association of Children’s Hospitals and Related Institutions
is a voice for health systems devoted to the well-being of America's
70 million children and their families. NACHRI is a not-for-profit
membership organization of children's hospitals, large pediatric
units of medical centers and related health systems, including those
that specialize in rehabilitative care of children with serious
chronic or congenital illnesses.
Association of Developmental Disabilities Councils NADDC is
the national organization of Developmental Disabilities Councils
that advocate and work for change on behalf of people with developmental
and other disabilities and their families.
Association of Protection and Advocacy Systems, Inc. Federally
mandated system in each state and territory which provides protection
of the rights of persons with disabilities through legally based
Attention Deficit Disorder Association ADDA's mission is to
help people with ADD lead happier, more successful lives through
education, research, and public advocacy. Whether you have ADD yourself,
or someone special in your life does, or you treat, counsel, or
teach those who do, ADDA is an organization for you.
Center for Youth with Disabilities NCYD is a project of the
University of Minnesota's Division of General Pediatrics and Adolescent
Health and is affiliated with the Society for Adolescent Medicine.
Established as an information and resource center focusing on adolescents
with chronic illnesses and disabilities, the Center's mission is
to: raise awareness of the needs of adolescents with chronic illnesses
and disabilities; expand the knowledge and involvement of those
who provide services to youth; promote programs and strategies which
enhance the ability of adolescents and young adults to grow, develop,
work, and participate in community life to their fullest capacity.
Coalition for Parent Involvement in Education Our mission is
to advocate the involvement of parents and families in their children's
education and to foster relationships between home, school, and
community that can enhance the education of all our nation's young
Deaf Education Network & Clearinghouse Info to Go, formerly
the National Information Center on Deafness, is a centralized source
of accurate, up-to-date, objective information on topics dealing
with deafness and hearing loss in the age group of 0-21.
Down Syndrome Society NDSS works every day to increase public
awareness about Down syndrome and discover its underlying causes
through research, education and advocacy.
Early Childhood Technical Assistance System
NECTAS is a national technical assistance consortium working
to support states, jurisdictions, and others to improve services
and results for young children with disabilities and their families.
Our primary business is technical assistance. This is a systematic
process for transferring knowledge about early childhood research,
practice, and policy to assist people and organizations in accomplishing
their goals for young children with disabilities and their families.
Caregivers Association is the only national, charitable organization
dedicated to making life better for all of America's family caregivers.
There are more than 25 million people who find themselves in a caregiving
role. And the numbers are growing daily. Family caregivers focus
on their loved one's needs. NFCA focuses on family caregivers.
National Fragile X Foundation
is a public nonprofit organization which is charged with increasing
public awareness and education, supporting research, aiding families,
and encouraging collaboration among professionals involved with
fragile X syndrome.
Council is a private, nonprofit umbrella organization comprised
of more than 100 national health-related organizations, including
over 40 of the nation's leading patient-based groups, also known
as voluntary health agencies. These groups represent approximately
100 million people with chronic diseases and/or disabilities.
Information Center for Children and Youth with Disabilities
NICHCY is the national information and referral center that provides
information on disabilities and disability-related issues for families,
educators, and other professionals. Our special focus is children
and youth (birth to age 22).
Health Information Clearinghouse (NOHIC), a service of the National
Institute of Dental and Craniofacial Research, is ready to help
meet oral health information needs for special care patients. Many
Americans have medical or disabling conditions that compromise oral
health. NOHIC is a resource for health professionals and these special
care patients that gathers and disseminates information from many
sources, including voluntary health organizations, research institutions,
government agencies, and industry.
on Disability promotes the full and equal participation of America's
54 million men, women and children with disabilities in all aspects
mission of the National
Parent Network on Disabilities (NPND) is to provide a presence
and national voice for ALL families of children youth and adults
National Parenting Association We believe that helping parents
helps kids. The organization was founded by author-activist Sylvia
Ann Hewlett to give parents a greater voice in the public arena.
Our goal is to build a parents' movement that unites mothers and
fathers across the country. Working together we can create a society
that values parenting, benefits children and strengthens America.
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Rehabilitation Information Center (NARIC) has collected and
disseminated the results of federally funded research projects for
20 years. NARIC's literature collection, which also includes commercially
published books, journal articles, and audiovisuals, averages around
200 new documents per month. NARIC is funded by the National Institute
on Disability and Rehabilitation Research (NIDRR) to serve anyone,
professional or lay person, who is interested in disability and
rehabilitation, including consumers, family members, health professionals,
educators, rehabilitation counselors, students, librarians, administrators,
Locator Service helps parents, caregivers, and professionals
find respite services in their state and local area. The service
is also useful when a family travels or must move to another state.
primary mission of the National
Spinal Cord Injury Association (NSCIA) is to educate, motivate
and empower survivors of spinal cord injury and disease through
our toll-free helpline, nationwide chapters and support groups to
achieve and maintain higher levels of independence and personal
National Sports Center for the Disabled (NSCD)
NSCD is an innovative non-profit organization that provides
recreation for children and adults with disabilities. What began
in 1970 as a one-time ski lesson for 23 amputee children has evolved
into the largest and most successful program of its kind in the
world. Participants learn there is "no mountain too high"
through NSCD opportunities that build self-confidence through recreational
and competitive challenges.
Transition Alliance for Youth with Disabilities The mission
of the NTA is to ensure that youth with disabilities, including
those with severe disabilities, acquire skills and knowledge, gain
experience, and receive services and supports necessary to achieve
successful postschool results, including postsecondary education,
gainful employment, independent living, community living, social
integration, and lifelong learning.
Parents Encouraging Parents (PEP) Professionals dedicated to
family empowerment and parents work together to enhance and expand
support services for children with disabilities and their families.
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Hampshire Family Voices NH Family Voices is a family-to-family
health information and resource project supported by New Hampshire
Department of Health and Human Services-Special Medical Services,
and the New Hampshire Coalition for Citizens with Disabilities-Parent
Information Center. New Hampshire Family Voices are parents of children
with special health, developmental, mental health and educational
needs. These parents have years of experience accessing and receiving
services as well as working to assist others in understanding and
identifying services that can be of assistance to them.
Hanover Health Network The hospitals and services that are part
of New Hanover Health Network have long, established roots in Southeastern
North Carolina. Working together under the umbrella of NHHN, they
are better equipped than ever to handle your family's health care
needs. Offering the most comprehensive and sophisticated array of
services in the region. As a public, not-for-profit system, we
offer care to everyone who needs it, regardless of their ability
York Families For Autistic Children, Inc. Based in New York,
NYFAC is open to all families of "special children" across
the nation and around the world. NYFAC was established to assist
families in accessing the best possible information, support, and
to give families a place to work out the huge emotional weight a
diagnosis of Autism can have on a family.
York State's Parent Training & Information Center
Professionals to enable individuals with disabilities to seek their
own potential. Congressional intent is for parent involvement!
A PTI is an organization staffed by experienced
parents who have been trained to bring up-to-date information to:
families with children with disabilities, professionals who work
with such families, and members of the community who are interested
in improving the quality of life for the people with disabilities.
Learning Disorders Association (NLDA)
Our intent is to bring awareness to NLD which is a neurological
disorder. We are dedicated to the research, education, and advocacy
for nonverbal learning disorders.
Inc. is a private not-for-profit Association of fifty-eight
chapters serving thousands of New York residents with mental retardation/developmental
disabilities. Headquartered in Delmar NY, providing services to
individuals and their families through local Chapters
within each County of the State.
Foundation (OI Foundation) is the only voluntary national health
organization dedicated to helping people cope with the problems
associated with osteogenesis imperfecta. The Foundation's mission
is to improve the quality of life for individuals affected by OI
through research to find a cure, education, awareness, and mutual
Advocacy Coalition for Educational Rights
PACER Center is a nonprofit, tax exempt Minnesota statewide
organization began in 1977. PACER’s mission is to improve and expand
opportunities that enhance the quality of life for children and
young adults with all disabilities – physical, mental, emotional,
learning – and their families. PACER now offers 21 major programs,
including Parent Training programs, programs for students and schools,
and technical assistance to other parent centers both regionally
Education Network PEN is Pennsylvania's statewide Parent Training
and Information Center. Much of the information included in this
site is designed to support Pennsylvania parents of children with
special needs, but information and links are included on Federal
Special Education, National Disability Issues and Resources, Special
Education Legal Links, Transportation, and Travel that will also
pertain to parents and individuals with disabilities in other states.
Parent Information Center of Delaware, Inc. is a non-profit
organization serving children and youths with special needs and
their families. We provide individual assistance, education,
support and referrals to allow families to become informed, skilled
and effective advocates.
Information Center of New Hampshire is an organization serving
children and youths with special needs and their families.
We provide information, technical assistance, individual assistance,
and support and referrals to allow families to become informed,
skilled and effective advocates.
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Partners Parents possess unique information about the development,
nature and needs of their children, which enables them to become
partners with professionals in planning and implementing an effective
educational plan for their child. We seek to empower parents to
become fully informed and active members of the educational planning
team for their children.
to Parent of Pennsylvania We are a network created by families
for families of children and adults with special needs. We
connect families in similar situations with one another so that
they may share experiences, offer practical information and/or support.
mission of Parents
Educating Parents and Professionals, Inc. (PEPP, Inc.) is to
provide a presence and State and National voice for all families
of children and youth with disabilities.
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Helping Parents is a parent-directed family resource center
serving children with special needs, their families, and the professionals
who serve them.
Let's Unite for Kids PLUK is a private, nonprofit organization
formed in 1984 by parents of children with disabilities and chronic
illnesses in the state of Montana for the purpose of information,
support, training and assistance to aid their children at home,
school and as adults.
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is a national non-profit organization that serves as an active liaison
between the patient and their insurer, employer and/or creditors
to resolve insurance, job discrimination and/or debt crisis matters
relative to their diagnosis through case managers, doctors and attorneys.
Patient Advocate Foundation seeks to safeguard patients through
effective mediation assuring access to care, maintenance of employment
and preservation of their financial stability.
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Parent Center, Inc. Our mission is to ensure that children,
youth, and adults with disabilities lead rich, active lives and
participate as full members of their schools and communities by
providing training, information, and technical assistance, including
best practices, to families and the professionals working with them.
PROMPT (Parents Reaching Out Model for Parent Training) is the
parent training and information center for the State of Louisiana.
We assist parents in securing a free, appropriate public education
for their children with special needs.
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Potentials, Inc is a private, non profit organization established
by a small group of parents dedicated to supporting a broad spectrum
of services to individuals with autism and their families.
Rhode Island Parent Information Network, Inc. We are a group
parents and professionals with the goal of improving education for
children with disabilities. They believed that if parents were
informed and educated, they could help their children reach their
Rinty For Kids (ArfKids
The "ArfKids" Mission: To provide disabled and terminally
ill children with specifically trained Service Dogs to assist in
the improvement of their quality of life and accessibility. Each
specially selected Service Dog and child will be trained and certified
according to A Rinty For Kids™, Inc. ("ArfKids™ ") criteria.
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Support Project is a national program dedicated to the interests
of brothers and sisters of people with special health and developmental
needs. The Project's primary goal is to increase the availability
of peer support and education programs for brothers and sisters
of people with special health and developmental needs.
Dakota University Affiliated Program (SDUAP)
Our Mission:The SDUAP works with others creating opportunities that
improve the lives of persons with disabilities and those they consider
their families. The SDUAP creates opportunities through training,
services and information.
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Child An online publication dedicated to parents of children
with special needs.
Education News Our vision is for every individual with a disability
to automatically receive the services and inclusion they are entitled
to in order to reach their fullest potential.
Needs Advocate for Parents provides information, education,
advocacy, and referrals to families with special needs children
of all ages and disabilities.
Special Needs Agency
consults and educates families in Pennsylvania and Maryland
in appropriate long-term planning and government entitlements for
a person with special needs.
The Mission of the Spina
Bifida Association of America is to promote the prevention of
spina bifida and to enhance the lives of all affected.
Mary's Healthcare System for Children is dedicated to achieving
optimal outcomes for the special infants, children, and adolescents
who come to us for care. Our pediatric specialists in medicine,
nursing, rehabilitation, psychology, social work, and education
work closely with parents and families to develop each child's full
Parent Advocacy Network, Inc. SPAN is a non-profit educational
and advocacy center for parents of children from birth to 21 years
of age. SPAN assists families of infants, toddlers, children and
youth with and without disabilities. Our overall purpose is to serve
as a vehicle for the exchange of ideas, promoting awareness of the
abilities and needs of children and youth and improving services
for children and families in the State of New Jersey.
Education & Advocacy Center of Northern California, Inc.The
SEA Center is a non-profit organization, founded in 1995. Ensures
that children have parents who are strong, knowledgeable, and well
United Brachial Plexus
Network (UBPN) is a registered non-profit organization devoted
to providing information, support and leadership for families and
those concerned with brachial plexus injuries worldwide.
Cerebral Palsy Association As the second largest health charity
in America, United Cerebral Palsy's mission is to advance the independence,
productivity and full citizenship of people with cerebral palsy
and other disabilities, through our commitment to the principles
of independence, inclusion and self-determination.
Cerebral Palsy Association of Nassau County, Inc. The association
is an independent, non profit health agency with an international
reputation for innovative, high quality programs. Many state-of
the-art programs serve children and adults with mild to severe developmental
and neurological disabilities including head injuries, speech impairments
and mental retardation.
Cerebral Palsy Associations of New York State, Inc. UCPA of
NYS has become a broad-based, multi-service organization with 23
Affiliates and two Service Divisions providing services and programs
for more than 40,000 individuals with cerebral palsy and developmental
disabilities and their families throughout New York State. UCPA
of NYS works with the State of New York to enhance the quality of
life for people with disabilities and their families.
Cerebral Palsy of North Florida UPC of North Florida founded
in 1953 by a small group of physicians and parents who wanted children
with developmental disabilities, including Cerebral Palsy as well
as other disabilities such as Spina Bifida, Down's Syndrome, etc.,
to receive the very best services possible in their own community.
We Stand of New York We are a community based parent resource
center servicing primarily culturally diverse families, who have
children with disabilities who reside in but not limited to, the
Greenpoint/Williamsburg sections of Brooklyn. Our goal is to assist
families in improving the quality of life for individuals with disabilities
in our community.
Vermont Parent Information
Center is a non-profit organization dedicated to increasing
and expanding educational and developmental opportunities that improve
the quality of life for children with special needs and their families.
Move Knowledge and understanding of movement disorders can help
move the healthcare profession and patients forward towards better
quality of treatment and care. Since 1991, WE MOVE has been educating
and informing healthcare professionals, patients, and the public
about movement disorders.
Virginia University Center for Excellence in Disabilities
The mission of (WVUCED) is to enhance the quality of life of individuals
of all ages with developmental and other disabilities so that they
and their families can experience productive, independent, and totally
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Association of Persons with Disabilities WAPD advances the interests
of persons with disabilities at national, state, local and home
levels. WAPD links the disabled and supporters to current "leading
edge" disability information via the various mediums of communication.
Institute on Disability is a non-profit public policy center
dedicated to the promotion of independence and full inclusion in
society of people with disabilities. Founded in 1983 by leaders
of the Independent Living/Civil Rights Movement for people with
disabilities, WID is committed to bringing policy into action.
is committed to providing our visitors and subscribers with access
to accurate and timely information on a broad range of topics relative
to developmental disabilities. If you have any special requests
or would like to see a specific topic covered in this informational
section, please e-mail us at firstname.lastname@example.org