is a federally funded project whose primary mission is to provide
information on assistive technology and rehabilitation equipment
available from domestic and international sources to consumers,
organizations, professionals, and caregivers within the United States.
Back to Top
Travel Source is dedicated to aiding travelers with disabilities
and the mature traveler. We accomplish this by having practical
information needed to go cross-town or around the world. The database
has not only accessible accommodations but also everything to make
a trip fun and exciting.
for Children of New York, Inc. AFC works on behalf of children
from infancy to age 21 who are at greatest risk for school-based
discrimination or academic failure. These include children with
disabilities, ethnic minorities, immigrants, homeless children,
foster care children, limited English proficient children and those
living in poverty.
Head Injury Foundation
The Alabama Head Injury Foundation (AHIF) was founded by professionals
and families in 1983 to increase public awareness of Traumatic Brain
Injury (TBI) and to stimulate the development of supportive services.
Today, AHIF is the largest state brain injury association in the
nation with model programs and statewide services.
Using their e-collaboration system™, All
Family Resources provides a wide-range of quality resources
that are easily available to both individuals and organizations,
for the purpose of enriching the lives of all families.
for Parental Involvement in Education ALLPIE is a nonprofit
organization that assists and encourages parental involvement in
education, wherever that education takes place: in public school,
in private school, or at home. AllPIE offers a newsletter (Options
in Learning), annual conferences and retreats, a book catalog, workshops,
lending library and more.
Back to Top
for Technology Access Our mission is to connect children and
adults with disabilities to technology tools. Today's technology
is redefining what it means to have a disability.
The mission of the American
Academy of Pediatrics is to attain optimal physical, mental
and social health and well being for all infants, children, adolescents
and young adults. To this purpose, the AAP and its members dedicate
their efforts and resources.
American Brain Tumor
Association (ABTA) was founded in 1973 by two families who lost
children to brain tumors. They vowed to find answers through research.
Today, ABTA is a global organization making major strides by funding
brain tumor research and providing the information patients need
to make educated decisions about their healthcare.
The American Academy
for Cerebral Palsy and Developmental Medicine is a multidisciplinary
scientific society devoted to the study of cerebral palsy and other
childhood onset disabilities, to promoting professional education
for the treatment and management of these conditions, and to improving
the quality of life for people with these disabilities.
Association of People with Disabilities A non-profit, non-partisan,
cross-disability organization whose goals are unity, leadership
Spinal Injury Association The mission of the association is
to: promote and establish standards of excellence for all aspects
of health care of individuals with spinal cord injury; provide education;
improve care; foster research which aims at preventing spinal cord
injury, and finding a cure for both acute and chronic SCI, and to
facilitate communication between members and other physicians, other
health care professionals, researchers and consumers.
website is sponsored by a new organization, the Childhood Apraxia
of Speech Association of North America (CASANA). The site is designed
to provide accessible and understandable information regarding Childhood
Apraxia of Speech (also called Developmental Apraxia of Speech,
Developmental Verbal Dyspraxia, and other terms).
Arc of Colorado
The Arc of Colorado advocates with others to create the conditions
under which all people with developmental disabilities experience
opportunities to develop competency and to make choices, to have
good relationships with family members and friends, to have respect
and dignity, and to be full participants in all community living.
Arc of New Jersey
The Arc of New Jersey is a statewide, private, nonprofit advocacy
organization founded in 1947. Our mission is to promote and advocate
for the welfare of persons whose primary disability is mental retardation,
and to foster the development of appropriate programs to enhance
their quality of life.
Arc of Maryland
The Arc of Maryland stands for dignity and respect for all persons,
regardless of their capabilities or needs for support. It exists
for the purpose of advocating for people with mental retardation
and their families; and empowering self-advocates.
Back to Top
Our mission and vision: Arc Minnesota is a private, non-profit,
statewide voluntary organization that is dedicated to ensuring the
full participation in their communities of people with developmental
disabilities and improving their lives and the lives of their families
by: Promoting a system of support and self-sufficiency; Advocating
for basic civil rights; Increasing public awareness; Improving public
policies; Providing information and referral sources; and Developing
opportunities and services, enabling people to become contributing
members of their communities.
Back to Top
Arc of Mississippi
The Arc serves any persons with developmental disabilities, family
members of persons with disabilities, professionals and interested
citizens. In short, anyone who could benefit from the services
of The Arc can be served.
Back to Top
Arc of North Carolina
We are committed to securing for all people with mental retardation
and other developmental disabilities the opportunity to choose and
realize their goals of where and how they learn, live, work and
Arc of Texas
Our Mission The Arc of Texas is the oldest and largest nonprofit,
volunteer organization in the state committed to expanding opportunities
for people with mental retardation and other developmental disabilities
to be included in their communities. The Arc supports families,
public policies, provides
training programs, and builds
a statewide network of advocates.
Back to Top
Arc of the United States
works through education, research and advocacy to improve the quality
of life for children and adults with mental retardation and their
families and works to prevent both the causes and the effects of
ARC of Utah Our
mission statement is "The Arc of Utah advocates for people
with mental retardation and related disabilities and their families
through support, outreach, education and legislation."
Back to Top
Information Network, Inc. is a non-profit volunteer organization.
We offer support and information to families of children with ADD,
adults with ADD and professionals through a network of AD-IN chapters.
The mission of the Autism
Society of America is to promote lifelong access and opportunities
for persons within the autism spectrum and their families, to be
fully included, participating members of their communities through
advocacy, public awareness, education, and research related to autism.
The purpose of the Autistics.org
project is to connect persons with autism with the services we need
to live whole and happy lives. The immediate goal of autistics.org
is to build a global database of information and resources by and
for persons on the autistic spectrum.
Dystonia and Parkinson's Foundation, Inc. represents a partnership
of patients, family members, researchers, clinicians and volunteers.
Their mission is to: Increase public awareness of dystonia, Parkinson's
disease and other movement disorders; Encourage and support advanced
research; Provide effective management and treatment for movement
disorders, and Promote medical and patient education about movement
The mission of the Brain
Injury Association, Inc. is to create a better future through
brain injury prevention, research, education and advocacy.
Injury Association of Maryland, Inc.
Our mission is to create a better future through brain injury prevention,
research, education and advocacy.
Kids Our Mission is to broaden the support and resources available
for children with chronic or life-threatening illnesses. By utilizing
the power of the Internet, Brave Kids delivers a multi-lingual resource
center to families and medical professionals whose goal is to empower
children with special needs to continue their brave struggle against
Children’s Medical Research Institute (CMRI) was founded in
1958 to perform scientific research with a commitment to better
treat, and where possible, prevent childhood illness and disability
so that all concerned can have a better quality of life.
(CMS) is the Arkansas Title V program for children with special
health care needs. CMS serves families with disabled and chronically
ill children from birth to age 18 (and up to age 21 if funds are
available). The dedicated, caring staff of CMS is vitally interested
in providing to these families services that they need to care for
their children and keep the families intact.
Reeve Paralysis Foundation (CRPF) encourages and supports research
to develop effective treatments and a cure for paralysis caused
by spinal cord injury and other central nervous system disorders.
The Foundation also allocates a portion of its resources to grants
that improve the quality of life for people with disabilities.
Alliance to Uphold Special Education CAUSE shall provide a collaborative
forum where consumers and providers can actively support an individualized,
free appropraite public education (FAPE) that enables all students
to maximize their options in the world community. Our priority is
the protection of the rights of students with disabilities.
Parent Advocacy Center, Inc. (CPAC) is a statewide nonprofit
organization that offers information and support to families of
children with any disability or chronic illness, age birth through
is a joint venture of two Washington, D.C. area firms with expertise
in communicating with Congress.
Council for Exceptional
Children (CEC) is the largest international professional organization
dedicated to improving educational outcomes for individuals with
exceptionalities, students with disabilities, and/or the gifted.
The Western New York Disabilities Forum is dedicated to bringing
you information related to physical, mental and emotional disabilities.
The Presidential Task Force on Employment of Adults with Disabilities
created http://www.disAbility.gov to provide one-stop online access
to resources, services, and information available throughout the
empowers people with disabilities to achieve their goals (in work,
home, school and play) in harmony with the community. Enable provides
assessment, instruction, therapy and support for children and adults
with disabilities and their families.
The Epilepsy Foundation
of America is a national, charitable organization, founded in
1968 as the Epilepsy Foundation of America. The only such organization
wholly dedicated to the welfare of people with epilepsy, our mission
is simple: to work for children and adults affected by seizures
through research, education, advocacy and service.
Foundation of Long Island
was founded in 1953 by a group of parents who were determined to
see their children lead productive, satisfying lives. Today, the
Foundation provides education, counseling and residential care to
Long Island residents with epilepsy and related conditions.
Foundation of Rochester and Syracuse Regions
is the agency that helps individuals and families affected by epilepsy
and related neurological impairments to understand, manage, and
cope with their disorders by providing education, advocacy and services.
Back to Top
Epilepsy Foundation of Southeast Texas
is a non-profit organization founded in 1983 to improve the lives
of the almost 100,000 adults and children with epilepsy in the 31
counties of southeast Texas. The Children Services Program provids
families of children with epilepsy a wide variety of educational,
recreational, support and advocacy services.
Eyes of Hope Foundation
is a nonprofit organization devoted to finding a cure for Spinal
Muscular Atrophy (SMA I), the number one inherited cause of infant
death. The initial goal for Eyes of Hope is to build national public
awareness of SMA and to help accelerate the funds raised for SMA
research. By working closely with all of the existing SMA fundraising
groups, The Eyes of Hope plans to maximize the results by initiating
collective marketing and public awareness campaigns.
Parent Magazine Provides information, support, ideas, encouragement
and outreach for parents and families of children with disabilities
and the professionals who work with them.
The Families and Advocate
Partnership for Education is a new project that aims to inform
and educate families and advocates about the Individuals with Disabilities
Education Act of 1997 (IDEA 97). The Partnership helps to ensure
that the changes made in IDEA are understood by families and advocates
and are put into practice at local and state levels.
of Spinal Muscular Atrophy
is the largest international organization dedicated solely to: Eradicating
spinal muscular atrophy (SMA) by promoting and supporting research,
helping families cope with SMA through informational programs and
support, and by educating the public and professional community
about SMA. We are a non-profit, 501(c)3 tax exempt organization.
Back to Top
Village is a global community that integrates information, resources,
and communication opportunities on the Internet for persons with
cognitive and other disabilities, for their families, and for those
that provide them services and support.
The Federation for Children
with Special Needs is a center for parents and parent organizations
to work together on behalf of children with special needs and their
families. We can help! Organized in 1975 as a coalition of parent
groups representing children with a variety of disabilities, the
Federation operates a Parent Center, which offers a variety of services
to parents, parent groups, and others who are concerned with children
with special needs.
Inc. The Internet portal where the entire disability community
can access reliable services and products, connect with peer support,
and keep up with disability-related news and information all day,
Larlham Foundation HLF is a private, non-profit agency serving
children and young adults with profound mental retardation and developmental
disabilities. Established in 1961, the Foundation has expanded from
its residential main campus in Mantua, Ohio to provide community
care throughout the northeast corner of the state.
Injury Hotline This site, headinjury.com, is a dynamic, interactive,
self-directed learning center. It is designed to empower visitors
to become highly informed, highly involved, self-advocates. Head
Injury Hotline provides information on traumatic brain injury and
the professionals treating it. It enables visitors to find the help
they need -- including self help-- and it empowers them to make
intelligent decisions about such help.
Children's Rehabilitation Hospital
provides Acute, Subacute and Outpatient Rehabilitation services
for children and adolescents from birth to twenty-one years of age.
Our interdisciplinary team of highly respected clinicians recognizes
that each child requires an individualized treatment plan based
on that child's specific medical, developmental, cultural and educational
website is a free World-Wide Directory - Portal Service for healthcare
professionals and consumers. Our main focus is to assist in the
task of locating medical and healthcare information, products, resources,
services and practitioners on the World-Wide-Web.
Project was designed to reach, inform, assist and motivate parents
to ensure that their disabled children receive appropriate help
and receive it as early as possible, thereby giving them a much
greater chance of a healthy, happy life. We find that our work especially
involved families caring for someone with an Autistic Spectrum Disorder
A place where people affected by disabilities can take advantage
of the community building power of the Internet. A one-stop resource
for information, guidance, conversation and companionship.
for Community Inclusion ICI supports the rights of children
and adults with disabilities to participate in all aspects of the
community. As practitioners, researchers, and teachers, we form
partnerships with individuals, families and communities. Together
we advocate for personal choice, self-determination, and social
and economic justice.
Rett Syndrome Association The mission of the IRSA is: to support
and encourage medical research to determine the cause and find a
cure for Rett syndrome, to increase public awareness of Rett syndrome,
and to provide informational and emotional support to families of
children with Rett syndrome.
Tremor Foundation was created to provide information, services
and support to individuals and families affected by Essential Tremors.
Autism Training Center Our mission to enhance supports for persons
with autism by providing information and technical assistance to
families and service providers across Kentucky.
Back to Top
is dedicated to providing a free, safe, and happy interactive environment
for young people receiving health services in the New York metropolitan
area, so that they can communicate with one another and with parents,
friends, doctors, nurses, and special guests.
Island Speech-Language-Hearing Association (LISHA)We
are an organization of approximately 1,000 speech-language pathologists
and audiologists on Long Island, N.Y. who are dedicated to sharing
ideas, discussing professional issues, disseminating information
and evaluating trends. We are proud of LISHA's long-standing commitment
to professional growth and community service.
Back to Top
OnLine is a service of The Learning Project at WETA, Washington,
D.C., in association with The Coordinated Campaign for Learning
Disabilities Association LDA is a national, non-profit, volunteer
organization including individuals with learning disabilities, their
families and professionals. LDA is dedicated to enhancing the quality
of life for all individuals with learning disabilities and their
families, to alleviating the restricting effects of learning disabilities,
and to supporting endeavors to determine the causes of learning
This website is aimed at parents of children with special needs,
child advocates, and any others who desire to; learn about education
of children with special needs in the least restrictive environment
appropriate for them ("LRE"); contact not-for-profit organizations
that promote LRE; link to informative websites on this topic.
Back to Top
National Parent to Parent Network is a national organization
for parents or care providers of a child with any disability, rare
or not so rare disorder, chromosomal abnormality or health condition.
MUMS' main purpose is to provide support to parents in the form
of a networking system that matches them with other parents whose
children have the same or similar condition.
Association for Down Syndrome (NADS), a not-for-profit organization,
was founded in Chicago in 1961 by parents of children with Down
syndrome who felt a need to create a better environment and bring
about understanding and acceptance of people with Down syndrome.
Association of Protection and Advocacy Systems, Inc. Federally
mandated system in each state and territory which provides protection
of the rights of persons with disabilities through legally based
National Ataxia Foundation
is a nonprofit organization established in 1957 with the primary
mission of encouraging and supporting research into Hereditary Ataxia,
a group of neurological disorders which are chronic and progressive
conditions affecting coordination.
National Center for Learning
Disabilities provides national leadership in support of children
and adults with learning disabilities by providing information,
resources, and referral services; developing and supporting innovative
educational programs, seminars, and workshops; conducting a public
awareness campaign; and advocating for more effective policies and
legislation to help individuals with learning disabilities.
Center for Youth with Disabilities NCYD is a project of the
University of Minnesota's Division of General Pediatrics and Adolescent
Health and is affiliated with the Society for Adolescent Medicine.
Established as an information and resource center focusing on adolescents
with chronic illnesses and disabilities, the Center's mission is
to: raise awareness of the needs of adolescents with chronic illnesses
and disabilities; expand the knowledge and involvement of those
who provide services to youth; promote programs and strategies which
enhance the ability of adolescents and young adults to grow, develop,
work, and participate in community life to their fullest capacity.
Coalition for Parent Involvement in Education Our mission is
to advocate the involvement of parents and families in their children's
education and to foster relationships between home, school, and
community that can enhance the education of all our nation's young
Down Syndrome Society NDSS works every day to increase public
awareness about Down syndrome and discover its underlying causes
through research, education and advocacy.
Caregivers Association is the only national, charitable organization
dedicated to making life better for all of America's family caregivers.
There are more than 25 million people who find themselves in a caregiving
role. And the numbers are growing daily. Family caregivers focus
on their loved one's needs. NFCA focuses on family caregivers.
Information Center for Children and Youth with Disabilities
NICHCY is the national information and referral center that provides
information on disabilities and disability-related issues for families,
educators, and other professionals. Our special focus is children
and youth (birth to age 22).
Institute of Neurological Disorders and Stroke The mission of
the NINDS is to reduce the burden of neurological disease-a burden
borne by every segment of society, by people all over the world.
To this end, the Institute supports and conducts research on the
healthy and diseased brain, spinal cord, and peripheral nerves.
Multiple Sclerosis Society The National Multiple Sclerosis Society's
mission is to end the devastating effects of MS. Through its fifty-state
network of chapters, the Society funds research, furthers education,
advocates and provides a variety of empowering programs for the
third of a million Americans who have MS and their families.
Health Information Clearinghouse (NOHIC), a service of the National
Institute of Dental and Craniofacial Research, is ready to help
meet oral health information needs for special care patients. Many
Americans have medical or disabling conditions that compromise oral
health. NOHIC is a resource for health professionals and these special
care patients that gathers and disseminates information from many
sources, including voluntary health organizations, research institutions,
government agencies, and industry.
on Disability promotes the full and equal participation of America's
54 million men, women and children with disabilities in all aspects
mission of the National
Parent Network on Disabilities (NPND) is to provide a presence
and national voice for ALL families of children youth and adults
National Parenting Association We believe that helping parents
helps kids. The organization was founded by author-activist Sylvia
Ann Hewlett to give parents a greater voice in the public arena.
Our goal is to build a parents' movement that unites mothers and
fathers across the country. Working together we can create a society
that values parenting, benefits children and strengthens America.
Information Center (NARIC) has collected and disseminated the
results of federally funded research projects for 20 years. NARIC's
literature collection, which also includes commercially published
books, journal articles, and audiovisuals, averages around 200 new
documents per month. NARIC is funded by the National Institute on
Disability and Rehabilitation Research (NIDRR) to serve anyone,
professional or lay person, who is interested in disability and
Locator Service helps parents, caregivers, and professionals
find respite services in their state and local area. The service
is also useful when a family travels or must move to another state.
primary mission of the National
Spinal Cord Injury Association (NSCIA) is to educate, motivate
and empower survivors of spinal cord injury and disease through
our toll-free helpline, nationwide chapters and support groups to
achieve and maintain higher levels of independence and personal
Transition Alliance for Youth with Disabilities The mission
of the NTA is to ensure that youth with disabilities, including
those with severe disabilities, acquire skills and knowledge, gain
experience, and receive services and supports necessary to achieve
successful postschool results, including postsecondary education,
gainful employment, independent living, community living, social
integration, and lifelong learning.
Parents Encouraging Parents (PEP) Professionals dedicated to
family empowerment and parents work together to enhance and expand
support services for children with disabilities and their families.
Hampshire Family Voices NH Family Voices is a family-to-family
health information and resource project supported by New Hampshire
Department of Health and Human Services-Special Medical Services,
and the New Hampshire Coalition for Citizens with Disabilities-Parent
Information Center. New Hampshire Family Voices are parents of children
with special health, developmental, mental health and educational
needs. These parents have years of experience accessing and receiving
services as well as working to assist others in understanding and
identifying services that can be of assistance to them.
Hanover Health Network The hospitals and services that are part
of New Hanover Health Network have long, established roots in Southeastern
North Carolina. Working together under the umbrella of NHHN, they
are better equipped than ever to handle your family's health care
needs. Offering the most comprehensive and sophisticated array of
services in the region. As a public, not-for-profit system, we
offer care to everyone who needs it, regardless of their ability
Information Center of New Hampshire is an organization serving
children and youths with special needs and their families.
We provide information, technical assistance, individual assistance,
and support and referrals to allow families to become informed,
skilled and effective advocates.
Partners Parents possess unique information about the development,
nature and needs of their children, which enables them to become
partners with professionals in planning and implementing an effective
educational plan for their child. We seek to empower parents to
become fully informed and active members of the educational planning
team for their children.
mission of Parents
Educating Parents and Professionals, Inc. (PEPP, Inc.) is to
provide a presence and State and National voice for all families
of children and youth with disabilities.
Helping Parents is a parent-directed family resource center
serving children with special needs, their families, and the professionals
who serve them.
Let's Unite for Kids PLUK is a private, nonprofit organization
formed in 1984 by parents of children with disabilities and chronic
illnesses in the state of Montana for the purpose of information,
support, training and assistance to aid their children at home,
school and as adults.
is a national non-profit organization that serves as an active liaison
between the patient and their insurer, employer and/or creditors
to resolve insurance, job discrimination and/or debt crisis matters
relative to their diagnosis through case managers, doctors and attorneys.
Patient Advocate Foundation seeks to safeguard patients through
effective mediation assuring access to care, maintenance of employment
and preservation of their financial stability.
PROMPT (Parents Reaching Out Model for Parent Training) is the
parent training and information center for the State of Louisiana.
We assist parents in securing a free, appropriate public education
for their children with special needs.
Back to Top
Support Project is a national program dedicated to the interests
of brothers and sisters of people with special health and developmental
needs. The Project's primary goal is to increase the availability
of peer support and education programs for brothers and sisters
of people with special health and developmental needs.
Dakota University Affiliated Program (SDUAP)
Our Mission:The SDUAP works with others creating opportunities that
improve the lives of persons with disabilities and those they consider
their families. The SDUAP creates opportunities through training,
services and information.
Back to Top
Child An online publication dedicated to parents of children
with special needs.
Education News Our vision is for every individual with a disability
to automatically receive the services and inclusion they are entitled
to in order to reach their fullest potential.
Needs Advocate for Parents Provides information, education,
advocacy, and referrals to families with special needs children
of all ages and disabilities.
Special Needs Agency
consults and educates families in Pennsylvania and Maryland
in appropriate long-term planning and government entitlements for
a person with special needs.
Mary's Healthcare System for Children is dedicated to achieving
optimal outcomes for the special infants, children, and adolescents
who come to us for care. Our pediatric specialists in medicine,
nursing, psychology, rehabilitation, social work, and education
work closely with parents and families to develop each child's full
Syndrome Association, Inc. TSA is a national non-profit voluntary
health organization with 54 chapters in the USA and over 30 contacts
in other countries. Members include people with TS, their relatives
and other interested, concerned supporters.
Syndrome Plus On this site you will find up-to-date, comprehensive
information on a number of childhood-onset conditions, including
diagnosis, treatment, parenting, and school-related issues and tips.
Learn the signs and symptoms of various conditions and what you
can do to help.
Cerebral Palsy Association As the second largest health charity
in America, United Cerebral Palsy's mission is to advance the independence,
productivity and full citizenship of people with cerebral palsy
and other disabilities, through our commitment to the principles
of independence, inclusion and self-determination.
Cerebral Palsy Association of Nassau County, Inc. The association
is an independent, non profit health agency with an international
reputation for innovative, high quality programs. Many state-of
the-art programs serve children and adults with mild to severe developmental
and neurological disabilities including head injuries, speech impairments
and mental retardation.
Cerebral Palsy Associations of New York State, Inc. UCPA of
NYS has become a broad-based, multi-service organization with 23
Affiliates and two Service Divisions providing services and programs
for more than 40,000 individuals with cerebral palsy and developmental
disabilities and their families throughout New York State. UCPA
of NYS works with the State of New York to enhance the quality of
life for people with disabilities and their families.
Back to Top
Move Knowledge and understanding of movement disorders can help
move the healthcare profession and patients forward towards better
quality of treatment and care. Since 1991, WE MOVE has been educating
and informing healthcare professionals, patients, and the public
about movement disorders.
Virginia University Center for Excellence in Disabilities
The mission of (WVUCED) is to enhance the quality of life of individuals
of all ages with developmental and other disabilities so that they
and their families can experience productive, independent, and totally
Back to Top
Association of Persons with Disabilities WAPD advances the interests
of persons with disabilities at national, state, local and home
levels. WAPD links the disabled and supporters to current "leading
edge" disability information via the various mediums of communication.
Back to Top
World Institute on Disability
is a non-profit public policy center dedicated to the promotion
of independence and full inclusion in society of people with disabilities.
Founded in 1983 by leaders of the Independent Living/Civil Rights
Movement for people with disabilities, WID is committed to bringing
policy into action.
Back to Top
is committed to providing our visitors and subscribers with access
to accurate and timely information on a broad range of topics relative
to developmental disabilities. If you have any special requests
or would like to see a specific topic covered in this informational
section, please e-mail us at email@example.com