Related Links

ABLEDATA is a federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States.
Back to Top

Access-Able Travel Source is dedicated to aiding travelers with disabilities and the mature traveler. We accomplish this by having practical information needed to go cross-town or around the world. The database has not only accessible accommodations but also everything to make a trip fun and exciting.
Back to Top

All Family Resources,using their e-collaboration system™,provides a wide-range of quality resources that are easily available to both individuals and organizations, for the purpose of enriching the lives of all families.
Back to Top

American Academy of Allergy, Asthma and Immunology (AAAAI) is the largest professional medical specialty organization representing allergists, clinical immunologists, allied health professionals, and other physicians with a special interest in allergy.
Back to Top

The mission of the American Academy of Pediatrics is to attain optimal physical, mental and social health and well being for all infants, children, adolescents and young adults. To this purpose, the AAP and its members dedicate their efforts and resources.
Back to Top

The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy.
Back to Top

Angelman Syndrome Foundation, Inc. ASF's Mission is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research.
Back to Top

Any Baby Can Child and Family Resource Center Serving families in Travis and Williamson Counties, Texas at risk of having a child with developmental delays or who are caring for a child with disabilities or critical health care needs.
Back to Top

Arkansas Children’s Hospital, a private, non-profit institution, is the only health care facility in Arkansas dedicated exclusively to children and is one of the ten largest in the nation.
Back to Top

AsthmaMoms AsthmaMoms is a network of families sharing answers for managing their children's asthma. It's also a community of concerned parents, reassuring one another that their deepest fears about their children's asthma can be overcome. It provides what the medical organizations can't, a supportive community of parents.
Back to Top

Association for the Bladder Exstrophy Community is an international support group network comprising individuals with bladder exstrophy, local parent-exstrophy support groups, and health care providers who work with patients and families living with bladder exstrophy. We collect resources, talent, and information to assist patients and families living with bladder exstrophy to help them master the medical and psychosocial issues relating to exstrophy.
Back to Top

The Association of Schools and Agencies for the Handicapped (ASAH) is a professional organization of private schools and agencies in New Jersey which provides highly specialized services to more than 10,000 children and adult with special needs.  Some of our goals are to insure high standards in all New Jersey private schools and agencies serving individuals with special needs and referral for anyone seeking appropriate educational placement of individuals with special needs.
Back to Top

Blood & Marrow Transplant Information Network (BMT InfoNet) Patient-friendly handbooks and a quarterly newsletter about transplantation. Links patients with survivors who can provide emotional support. Maintains an online Directory of Transplant Centers in the US and Canada, an online Directory of Drugs used during transplant, and an online Resource Directory. Offers attorney referrals for patients who have insurance disputes. Comprehensive website.
Back to Top

Brave Kids Our Mission is to broaden the support and resources available for children with chronic or life-threatening illnesses. By utilizing the power of the Internet, Brave Kids delivers a multi-lingual resource center to families and medical professionals whose goal is to empower children with special needs to continue their brave struggle against illness.
Back to Top

Since 1944, Cancer Care, Inc. has been dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones.
Back to Top

 The Candlelighters Childhood Cancer Foundation CCCF has a network of parent support groups in all US states and on every continent.  The services that local groups commonly provide include meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding and publications.
Back to Top

The mission of Children with Diabetes.com is to promote understanding of the care and treatment of diabetes, especially in children; to increase awareness of the need for unrestricted diabetes care for children at school and daycare; to support families living with diabetes; and to promote understanding of research into a cure.
Back to Top

Children’s Cancer Research Fund (CCRF) was founded in January 1993 by a small group of doctors, nurses and parents. The fund's primary goal is to establish and foster research in childhood cancer as well as enrich the quality of life for children with cancer by improving clinical and support services. CCRF is based at New York Medical College/Westchester Medical Center in Valhalla, New York.
Back to Top

Children’s Dream Foundation The CDF's only agenda is improving the health care services provided to the community's most precious resource…. its children.
Back to Top

Children's Hospice International (CHI) was founded as a non-profit organization to provide a network of support and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological, social and spiritual expertise and information in the United States and abroad.
Back to Top

Children’s Liver Alliance Empowering the hearts and minds of children with liver disease, their families and the Medical professions who care for them.
Back to Top

Children's Liver Association for Support Services C.L.A.S.S. is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Our goal is to be both a service to families and a valuable resource for the medical community.
Back to Top

Children’s Medical Services (CMS) is the Arkansas Title V program for children with special health care needs. CMS serves families with disabled and chronically ill children from birth to age 18 (and up to age 21 if funds are available). The dedicated, caring staff of CMS is vitally interested in providing to these families services that they need to care for their children and keep the families intact.
Back to Top

Chromosome Deletion Outreach, Inc. is a non-profit, all volunteer, parent support organization founded in 1992. Our membership consists of individuals, families and professionals seeking information regarding a variety of chromosome disorders. Although our focus in the past was deletions, we now encompass most types of chromosome disorders: including partial duplications (trisomies), inversions, translocations, rings and sex chromosome disorders. CDO's mission is to provide support to parents of children born with rare chromosome disorders, gather and disseminate information and promote research and a positive community understanding of these disorders.
Back to Top

The Connecticut Parent Advocacy Center, Inc. (CPAC) is a statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 21.
Back to Top

Congress.org is a joint venture of two Washington, D.C. area firms with expertise in communicating with Congress.
Back to Top

Craniosynostosis and Parents Support, Inc. (C.A.P.S.) is a national nonprofit organization who is dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly.  Our goal is to raise public and professional awareness through educating doctors, healthcare organizations, parents, and loved ones.
Back to Top

Disability.gov The Presidential Task Force on Employment of Adults with Disabilities created http://www.disAbility.gov to provide one-stop online access to resources, services, and information available throughout the Federal government.
Back to Top

drkoop.com is an internet-based consumer healthcare network. Our network provides users with trusted healthcare content, services and tools to empower them to better manage their health.
Back to Top

The Eyes of Hope Foundation is a nonprofit organization devoted to finding a cure for Spinal Muscular Atrophy (SMA I), the number one inherited cause of infant death. The initial goal for Eyes of Hope is to build national public awareness of SMA and to help accelerate the funds raised for SMA research. By working closely with all of the existing SMA fundraising groups, The Eyes of Hope plans to maximize the results by initiating collective marketing and public awareness campaigns.
Back to Top

The Families and Advocate Partnership for Education is a new project that aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 (IDEA 97). The Partnership helps to ensure that the changes made in IDEA are understood by families and advocates and are put into practice at local and state levels.
Back to Top

Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. Working at the national, state and community levels, we have earned a national reputation as an effective voice for health care consumers for over 15 years.
Back to Top

Family Voices Created by families from throughout the United States who have children with special health needs. A diverse group, representing a wide variety of children, health conditions, families, and communities.
Back to Top

The mission of the Fathers Network is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
Back to Top

The Federation for Children with Special Needs is a center for parents and parent organizations to work together on behalf of children with special needs and their families. We can help! Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center, which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
Back to Top

The Genetic Alliance (formerly The Alliance of Genetic Support Groups, Inc.), is an international coalition of individuals, professionals and genetic support organizations that is working together to enhance the lives of everyone impacted by genetic conditions.
Back to Top

HealthAnswers, Inc. is the producer of a comprehensive, educational and award-winning interactive healthcare Web site for consumers and professionals alike.
Back to Top

HealthBridge Children's Rehabilitation Hospital provides Acute, Subacute and Outpatient Rehabilitation services for children and adolescents from birth to twenty-one years of age. Our interdisciplinary team of highly respected clinicians recognizes that each child requires an individualized treatment plan based on that child's specific medical, developmental, cultural and educational needs.
Back to Top

The HealthLinks.net website is a free World-Wide Directory - Portal Service for healthcare professionals and consumers. Our main focus is to assist in the task of locating medical and healthcare information, products, resources, services and practitioners on the World-Wide-Web.
Back to Top

@InsideHealthCare.com An extensive listing and directory of Internet healthcare resources including online organizations, clinical information, policy positions and current research.
Back to Top

Institute for Child Health Policy , a state-wide Institution of Florida's State University System, was established in October 1986. The Institute has headquarters at the University of Florida, in Gainesville and affiliates at the University of South Florida, Florida State University and the University of Miami.  The Institute for Child Health Policy has focused its attention on children in managed care with special a emphasis on children with special health care needs.
Back to Top

The Jason Program is a non-profit organization that creates a community of care and support for children and adolescents with life-threatening and terminal illness. We are dedicated to creating community based teams trained in the special needs of these children and their families throughout the state of Maine.
Back to Top

Joslin Diabetes Center and the Joslin Clinic are international leaders in diabetes treatment, research, and education. Established in 1898, and affiliated with Harvard Medical School, Joslin leads the field in both basic and clinical research, and is devoted to educating both patients and professionals.
Back to Top

The mission of the Juvenile Diabetes Foundation International (JDF) is to find a cure for diabetes and its complications through the support of research. We work to accomplish this by finding and funding the best and most relevant research to help achieve a cure for this devastating disease.
Back to Top

Kaleida Health When it comes to comprehensive health care in Western New York, Kaleida Health is by far the dominant provider with five hospitals, 60-plus service locations, research and residency programs, and some of the world's most advanced technology providing clinical research, state-of-the-art procedures, and a full spectrum of prenatal to geriatric services.
Back to Top

Kids’ Home at National Cancer Institute CancerNet provides recent and accurate cancer information from the National Cancer Institute, the Federal Government's principal agency for cancer research. You will find a wide range of cancer information including treatment options, clinical trials, ways to reduce cancer risk, cope with cancer, as well as resources on support groups, financial assistance, educational materials, and much more.  Many young persons are treated for cancer, HIV, and other illnesses. This section is for them. We hope you will visit here often and contribute your own artwork, stories, poems, or ideas for this area.
Back to Top

KidsHealth.org is one of the largest sites on the Web providing doctor-approved health information about children from before birth through adolescence.
Back to Top

Kids With Heart Providing support, education, and information for families of children and adults with congenital heart defects and acquired heart disease.
Back to Top

KFS Connection (Klippel-Feil Syndrome) The KFS Support Connection was founded in June of 1996, to provide three basic purposes. First, the Members' Directory and Chat Connection foster the sharing of information and support between families or individuals with KFS. Second, these pages will be continually updated with information and links that KFS Connection members have identified as being helpful in overcoming the various KFS-related problems they face each day. Third, research into KFS is facilitated through the gathering of individual medical information and symptoms, so that the existing knowledge of KFS can be expanded and clarified.
Back to Top 

Maine Parent Federation provides information about: specific disabilities, parenting issues, education, services, support groups and other resources available to assist families and professionals within the home, school and community.
Back to Top

Make-A-Wish Foundation of Metro New York is the largest Make-A-Wish chapter in the country. Since its inception in 1983, the Metro New York chapter has fulfilled more than 3,500 wishes for children with life-threatening illnesses.
Back to Top

The mission of the March of Dimes is to improve the health of babies by preventing birth defects and infant mortality. The March of Dimes carries out this mission through programs of research, community services, education and advocacy.
Back to Top

Massachusetts Citizens for Children (MCC) was founded in 1959 by Dr. Martha May Eliot, an internationally recognized pediatrician and chief of the US Children's Bureau (1951 - 1956). We are a non-profit statewide child advocacy organization, whose mission is to improve the lives of the state's most vulnerable children through advocacy by concerned citizens.
Back to Top

MUMS: National Parent to Parent Network is a national organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. MUMS' main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
Back to Top

The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Act of 1937, is the Federal Government's principal agency for cancer research and training.
Back to Top

The National Children's Cancer Society (N.C.C.S.) is a non-profit tax exempt organization whose mission is to provide direct financial support to children with cancer and their families, for expenses related to cancer treatment.
Back to Top

The National Children’s Leukemia Foundation is a national, non-profit organization whose sole purpose is to provide a wide variety of services, support, and referrals to leukemia patients and their families. Our primary goal is to ensure access to state-of-the-art treatment for every leukemia patient - regardless of ability to pay.
Back to Top

National Early Childhood Technical Assistance System (NECTAS) is a national technical assistance consortium working to support states, jurisdictions, and others to improve services and results for young children with disabilities and their families. Our primary business is technical assistance. This is a systematic process for transferring knowledge about early childhood research, practice, and policy to assist people and organizations in accomplishing their goals for young children with disabilities and their families.
Back to Top

The National Family Caregivers Association is the only national, charitable organization dedicated to making life better for all of America's family caregivers. There are more than 25 million people who find themselves in a caregiving role. And the numbers are growing daily. Family caregivers focus on their loved one's needs. NFCA focuses on family caregivers.
Back to Top

The National Health Councill is a private, nonprofit umbrella organization comprised of more than 100 national health-related organizations, including over 40 of the nation's leading patient-based groups, also known as voluntary health agencies.  These groups represent approximately 100 million people with chronic diseases and/or disabilities.
Back to Top

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports basic and clinical research.
Back to Top

National Marfan Foundation This organization helps people who have Marfan syndrome and related connective tissue disorders. It provides information and materials about the disorder and about how to seek appropriate medical care.
Back to Top

National Multiple Sclerosis Society The National Multiple Sclerosis Society's mission is to end the devastating effects of MS. Through its fifty-state network of chapters, the Society funds research, furthers education, advocates and provides a variety of empowering programs for the third of a million Americans who have MS and their families.
Back to Top

The National Oral Health Information Clearinghouse (NOHIC), a service of the National Institute of Dental and Craniofacial Research, is ready to help meet oral health information needs for special care patients. Many Americans have medical or disabling conditions that compromise oral health. NOHIC is a resource for health professionals and these special care patients that gathers and disseminates information from many sources, including voluntary health organizations, research institutions, government agencies, and industry.
Back to Top

The National Organization for Albinism and Hypopigmentation NOAH is a non-profit organization for people who have albinism, their families and the professionals who support them. NOAH is run entirely by volunteers.
Back to Top

The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Back to Top

National Pediatric AIDS Network NPAN is a resource for information on children and adolescents with HIV/AIDS. NPAN is a non-profit organization that works collaboratively with a number of other HIV/AIDS information providers.
Back to Top

The National Respite Locator Service helps parents, caregivers, and professionals find respite services in their state and local area. The service is also useful when a family travels or must move to another state.
Back to Top

The National Sports Center for the Disabled (NSCD) is an innovative non-profit organization that provides recreation for children and adults with disabilities. What began in 1970 as a one-time ski lesson for 23 amputee children has evolved into the largest and most successful program of its kind in the world.  Participants learn there is "no mountain too high" through NSCD opportunities that build self-confidence through recreational and competitive challenges.
Back to Top

The National Sudden Infant Death Syndrome Resource Center (NSRC) provides information services and technical assistance on sudden infant death syndrome (SIDS)and related topics. Our goal is to promote understanding of SIDS and provide comfort to those affected by SIDS through information sharing.
Back to Top

National Tay-Sachs and Allied Diseases Association, Inc. (NTSAD) was founded in 1956 by a small group of concerned parents with children affected by Tay-Sachs disease or a related genetic disorder. Dedicated to the defeat of Tay-Sachs and several allied diseases, NTSAD was an early pioneer in the development of community education about Tay-Sachs disease, carrier screening programs and laboratory quality control programs -- thereby ensuring that those being tested received accurate and reliable information and test results.
Back to Top

Nevada Parents Encouraging Parents (PEP) Professionals dedicated to family empowerment and parents work together to enhance and expand support services for children with disabilities and their families.
Back to Top

New Hampshire Family Voices NH Family Voices is a family-to-family health information and resource project supported by New Hampshire Department of Health and Human Services-Special Medical Services, and the New Hampshire Coalition for Citizens with Disabilities-Parent Information Center. New Hampshire Family Voices are parents of children with special health, developmental, mental health and educational needs. These parents have years of experience accessing and receiving services as well as working to assist others in understanding and identifying services that can be of assistance to them.
Back to Top

New Hanover Health Network The hospitals and services that are part of New Hanover Health Network have long, established roots in Southeastern North Carolina.   Working together under the umbrella of NHHN, they are better equipped than ever to handle your family's health care needs. Offering the most comprehensive and sophisticated array of services in the region.  As a public, not-for-profit system, we offer care to everyone who needs it, regardless of their ability to pay.
Back to Top

New York State's Parent Training & Information Center (PTI) Parents supporting parents and professionals to enable individuals with disabilities to seek their own potential. Congressional intent is for parent involvement! A PTI is an organization staffed by experienced parents who have been trained to bring up-to-date information to: families with children with disabilities, professionals who work with such families, and members of the community who are interested in improving the quality of life for the people with disabilities.
Back to Top

North American Society for Pediatric Gastroenterology and Nutrition, founded in 1972, is the only society in North America and the largest in the world, dedicated to serving the pediatric gastroenterology and nutrition community. NASPGN was established to advance the understanding of the normal development and physiology of diseases of the gastrointestinal tract and liver in infants, children, and adolescents, and to foster the dissemination of this knowledge through scientific meetings, public education, and collaboration with other organizations concerned with pediatric gastroenterology and nutrition.
Back to Top

Parent Education Network (PEN) is Pennsylvania's statewide Parent Training and Information Center. Much of the information included in this site is designed to support Pennsylvania parents of children with special needs, but information and links are included on Federal Special Education, National Disability Issues and Resources, Special Education Legal Links, Transportation, and Travel that will also pertain to parents and individuals with disabilities in other states.
Back to Top

Parent Information Center of New Hampshire is an organization serving children and youths with special needs and their families.  We provide information, technical assistance, individual assistance, and support and referrals to allow families to become informed, skilled and effective advocates.
Back to Top

The mission of Parents Educating Parents and Professionals, Inc. (PEPP, Inc.) is to provide a presence and State and National voice for all families of children and youth with disabilities.
Back to Top

Parents Helping Parents is a parent-directed family resource center serving children with special needs, their families, and the professionals who serve them.
Back to Top

Parents, Let's Unite for Kids PLUK is a private, nonprofit organization formed in 1984 by parents of children with disabilities and chronic illnesses in the state of Montana for the purpose of information, support, training and assistance to aid their children at home, school and as adults.
Back to Top

Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
Back to Top
 

The Rhode Island Parent Information Network, Inc. is a group parents and professionals with the goal of improving education for children with disabilities.  They believed that if parents were informed and educated, they could help their children reach their full potential.
Back to Top

The Sibling Support Project is a national program dedicated to the interests of brothers and sisters of people with special health and developmental needs. The Project's primary goal is to increase the availability of peer support and education programs for brothers and sisters of people with special health and developmental needs.
Back to Top

Special Child An online publication dedicated to parents of children with special needs.
Back to Top

Special Needs Advocate for Parents provides information, education, advocacy, and referrals to families with special needs children of all ages and disabilities.
Back to Top

The Special Needs Agency consults and educates families in Pennsylvania and Maryland in appropriate long-term planning and government entitlements for a person with special needs.
Back to Top

St. Mary's Healthcare System for Children is dedicated to achieving optimal outcomes for the special infants, children, and adolescents who come to us for care. Our pediatric specialists in medicine, nursing, rehabilitation, psychology, social work, and education work closely with parents and families to develop each child's full potential.
Back to Top

Statewide Parent Advocacy Network, Inc. SPAN is a non-profit educational and advocacy center for parents of children from birth to 21 years of age. SPAN assists families of infants, toddlers, children and youth with and without disabilities. Our overall purpose is to serve as a vehicle for the exchange of ideas, promoting awareness of the abilities and needs of children and youth and improving services for children and families in the State of New Jersey.
Back to Top

The Turner Syndrome Society of the U.S. To promote the successful rearing, affirmation, and support of individuals affected by Turner Syndrome.
Back to Top

The Vascular Birthmarks Foundation provides support and resources for children and adults born with hemangiomas, port wine stains, and other vascular birthmarks.
Back to Top

Wilson's Disease Association International (WDA) is an all-volunteer organization striving to promote the well being of patients with Wilson's Disease and their families and friends. Wilson's Disease is a rare genetic disease. It is often very difficult to find accurate, timely information on the disease. Our web site addresses this need by offering information about the disease, its cause, symptoms, and treatments.
Back to Top

KidNeeds.com is committed to providing our visitors and subscribers with access to accurate and timely information on a broad range of topics relative to developmental disabilities. If you have any special requests or would like to see a specific topic covered in this informational section, please e-mail us at info@kidneeds.com

Back to Top

 

 

 

  Asthma and Physical Acitivy in the School
  Benefits of Animal Assisted Therapy
  Coping with the Early Years
  Development of Pediatric Pain Management Programs In Post-Acute Rehabilitation Settings
  Dual Exceptionalities
  Headache
Health Risks in the Classroom: Children with Asthma and Allergies Need to Take Special Precautions at School
  HIV Infection and AIDS: An Overview
  HIV Infection in Adolescents
  Lead - The #1 Environmental Hazard to Many Children
  Marfan Syndrome: Questions & Answers
  Otitis Media (Ear Infections)
  A Parent's Guide: Accessing Parent Groups
  A Parent's Guide to Doctors, Disabilities and The Family
  Pituitary Tumors in Children
  Prevention of Type 1 Diabetes
  Urinary Incontinence in Children
What is Special Oral Health Care