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PARENT'S GUIDE TO
DOCTORS, DISABILITIES, AND THE FAMILY
By Suzanne Ripley
Q:
How Do Families Interview Doctors?
When
you have your list of referrals, begin the process of "interviewing"
the prospective doctors. Talking to doctors about their areas of
interest is not uncommon; there is no reason to feel uncomfortable
about such a process. Begin by phoning the physician's office. Ask
to speak to the receptionist or nurse first and ask again if this
doctor sees children like yours in his/her practice. If the answer
is yes, or if the nurse seems positive about the doctor's interest
in children like yours, ask for the doctor to give you a call. Doctors
usually set aside some time each day to return calls; be sure to
make it clear that this call will take a bit longer than most and
that you would like him/her to phone when there is time to talk
for about 5 or 10 minutes. Do this for each of the doctors on your
referral list.
If
your family receives medical care through a clinic, talk to the
person in charge to learn how the public health department works
with children who need in-depth medical attention. Find out what
services are available, how to access them, who is the case manager
or keeper of all the records, and the eligibility requirements for
all of this. Ask what interagency relationships this clinic has
with other health care providers in your state and with the education
department, when applicable. If the person you are asking does not
know the answers to your questions, ask who on staff is familiar
with your needs. If the person you are asking is too busy to talk
to you, ask when you could come back or when he/she could phone
you so you will have time to discuss your concerns. There are policies
for public health clinics to work with other medical facilities
to meet the needs of children with unique or chronic health care
difficulties. You will need to keep asking questions until you find
the person who can make these connections for you. By asking lots
of questions, you can learn how to work effectively with your state's
and county's public health service to provide all the specialized
medical services your child may need.
Q:
What Do You Say to a Doctor You've Never Met?
A: When you speak to the doctor, again explain your child's unique
needs and your family's expectations. Ask if children like yours
are an area of interest to him/her. Ask the most important questions
on your list of expectations for a pediatrician for your child.
Does he/she have experience with children who have social or behavior
difficulties? Does he/she feel comfortable working in a team type
situation with other specialists, the family and schools? (A suggested
list of questions is listed at the end of this article.) After you
have asked these questions to all the doctors on your list, you
may want to make an appointment to see the doctor whose responses
were most positive and favorable. You will be the one who makes
this judgement based on your wants and his/her responses to your
questions, and general attitude to your needs. If you would like
to first bring your child in for the doctor to examine, then ask
if it is possible to arrange an appointment which possibly may last
longer than usual. If your child has difficulty waiting and does
not do well sitting in a doctor's office, schedule your appointment
either first thing in the morning or as the first appointment after
lunch. Appointments are made by the receptionist/secretary not the
doctor, so be sure to let the receptionist know that your child
will not be able to wait comfortably (or you will be uncomfortable
controlling your child in a waiting room) and you will take the
next available appointment which can guarantee little or no waiting,
even if that means setting the appointment weeks in advance. Your
stress level is important too, if you do not want to deal with an
active child in a crowded doctor's office, then plan your visits
in advance and avoid distressing situations.
In
clinics there are also times which are less busy. If your child
cannot comfortably sit in a clinic to wait for the doctor, talk
to the nurse in charge and explain the problem. Ask what times of
day are least busy. Frequently the very end of the day is the quietest,
since many patients have already left and the staff is interested
in finishing appointments for the day.
Q:
What Should a Family Do Before the First Visit to the Doctor?
A:
This "new" doctor will need information about your child and his/her
medical history. Before the first appointment, be sure all medical
records are either mailed or delivered to the doctor's office. It
would be useful for these records to arrive at least a week before
your visit so that the doctor has time to look them over.
If
your child has already been seen by specialists, have these reports
sent to the doctor too. If your child has educational assessments,
send these along as well. The more the doctor knows about your child,
the better able he/she is to discuss your concerns.
Requesting that medical records be sent to another doctor is routine.
You should not feel uncomfortable requesting your child's records.
If your child has already been seeing a doctor, it is always acceptable
to request an additional opinion without insulting the first doctor.
You
can phone or write to the first doctor's office and say, "I am interested
in discussing my child's situation with another doctor to get additional
opinions. Please send a copy of my child's records to Dr. (fill
in the name) at (give the mailing address)."
You
might also make a list of topics for discussion with the "new" doctor.
Since many children are shy around a doctor, especially one they've
never met before, you may need to bring up problems which the doctor
cannot readily see. For instance, if you suspect your child may
have a language delay, say so. Then the doctor can try to initiate
more conversation from your child to better observe your concerns.
If you are worried about possible developmental delays, make a list
of things your child does or doesn't do to give the doctor concrete
examples of behavior he/she may not be able to observe in the office.
If you would like a referral for a hearing screening or vision tests,
be sure to mention this. Doctors can conduct preliminary visual,
hearing and speech screenings in their offices to help to determine
if a specialist is needed.
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