KidNeeds.com
is proud to have assembled an Advisory Board of professionals and
other caring practitioners working in the fields of healthcare,
rehabilitation and other allied service areas. Our Professional
Advisory Board will provide us with information, material and feedback
on the content available through our website. Our members are individuals
who are respected in their field of practice and persons who continue
to contribute greatly toward improving the quality of life for children
with special needs throughout our country.
Andrew
Adesman, M.D.
Chief, Division of Developmental and Behavioral Pediatrics
Schneider Children's Hospital
269-01 76th Avenue
New Hyde Park, New York 11040
Dr.
Adesman is a developmental pediatrician on the full-time faculty
of Schneider Children's Hospital. Dr. Adesman is a board-certified
pediatrician who has received two additional years of formal training
in Developmental Pediatrics -- a pediatric sub-specialty focusing
on the early diagnosis, evaluation, and management of developmental
problems in children. Dr. Adesman is an Associate Professor of Pediatrics
at the Albert Einstein College of Medicine. As Chief of the Division
of Developmental & Behavioral Pediatrics, Dr. Adesman is also Medical
Director of the High Risk Newborn Developmental Follow-up Program
and the Early Intervention Program at Schneider Children's Hospital.
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Michael
Aronin
152 Langdon Farm Circle
Odenton, Maryland 21113
Michael
Aronin is a nationally acclaimed speaker who teaches his audiences
how to get past personal shortcomings and move forward productively
in their careers. Being both a comedian and motivational speaker,
he is able to make this difficult topic both entertaining and enlightening.
Michael Aronin knows two things: he's got a killer sense of humor,
and he's got cerebral palsy. But Michael never let his disability
get him down - in fact it hardly even phased him. Michael speaks
about what it was like growing up disabled in an able bodied world
- of the importance of believing in ourselves, of building and maintaining
a support system, and of the crucial role humor and attitude can
play in our lives.
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Scott
L. Barkin, Ph.D.
Director of Program Operations
The Block Institute
376 Bay 44th Street
Brooklyn, New York 11214
Dr.
Barkin is a licensed clinical psychologist who is highly regarded
for his expertise in the areas of behavioral interventions and staff
development and training.
As
Director of Program Operations at The Block Institute he oversees
the provision of clinical, rehabilitative and support services for
children and adults diagnosed with mental retardation and other
developmental disabilities participating in the Institute's Early
Intervention, preschool and day activity programs.
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Jaclynn
Faffer, D.S.W.
Executive Director
Ruth Rales Jewish Family Service of South Palm Beach County
21300 Ruth and Baron Coleman Boulevard
Boca Raton, Florida 33428
Dr.
Jaclynn Faffer is the Executive director of Ruth Rales Jewish Family
Service of South Palm Beach County, a human service agency providing
a full range of services to children, adolescents, adults and seniors.
Dr. Faffer serves as consultant to the National Mutiple Sclerosis
society on the psychological impact of chronic physical illness
and disability. She has published numerous articles on the psychological
impact of chronic physical disability. Dr. Faffer has been an Adjunct
Professor of social work at graduate schools of social work in New
York and Florida.
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Judi
Gerson
Administrator of Affiliate Services
United Cerebral Palsy Associations of New York State, Inc.
90 State Street, Suite 929
Albany, New York 12207
Judi
Gerson is Administrator of Affiliate Services for United Cerebral
Palsy Associations of New York State, Inc. Ms. Gerson is extremely
well versed on matters of importance to the developmental disabilities
community in New York State and is greatly involved in statewide
issues pertaining to special education, early intervention and clinical
treatment for children and adults with developmental disabilities.
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Burton
Grebin, M.D.
President and Chief Executive Officer
St. Mary's Healthcare System for Children
29-01 216th Street
Bayside, New York 11360
During
his 30 years in healthcare, Dr. Burton Grebin has been an academic
pediatrician, a teacher, a hospital administrator, and an eloquent
advocate for better programs and policies for children with special
health needs and their families. Dr. Grebin's local, state and national
activities range broadly on both a professional and policy level.
Among his current activities, he is a member of the Board of Trustees
and Chairman of the Council on Child Advocacy, The National Association
of Children's Hospitals and Co-chair of the Hospital Association
of New York State Task Force on Sub-acute Care. Dr. Grebin is also
a Professor of Clinical Pediatrics at Columbia University's College
of Physicians and Surgeons. A recognized leader in healthcare industry
and child advocacy fields, Burton Grebin has received numerous awards
and honors for his work on behalf of children in need.
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Mark
Hoffacker
Advocacy Manager
St. Mary's Foundation for Children
29-01 216th Street
Bayside, New York 11360
As
Advocacy Manager for the St. Mary's Foundation for Children, Mr.
Hoffacker conducts research, identifies and assists with the implementation
of programs and policies that impact children's health, safety and
quality of life. He is co-producer of the video, Breathing Easy:
Children on Ventilators in School as well as a contributing author
to, The Early Intervention Training Project Manual a workbook for
service providers of families with children birth to three. Mr.
Hoffacker also serves as Co-Chair of the Long Island Network for
Families of Children with Special Health Care Needs.
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Marla
B. Kraus
Executive Director
Special Needs Advocate for Parents (SNAP)
1801 Avenue of the Stars, #401
Century City, California 90067
Marla
Kraus is currently the Executive Director of Special Needs Advocate
for Parents (SNAP), a non-profit organization assisting parents
of children with special needs providing information, education,
and referrals. SNAP is particularly known for providing information
and education on special needs estate planning. Prior to becoming
Executive Director, Ms. Kraus was one of SNAP’s original Board members.
She was chosen due to her skills as an advocate for her son Sammy,
who was born in 1991 with multiple disabilities. Ms. Kraus has
presided as a hearing officer for the Los Angeles County Mental
Health Courts and the City of Santa Monica Rent board and has acted
as temporary judge for the Los Angeles Municipal Courts.
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Andrew
Malekoff, A.C.S.W., C.A.S.A.C.
Associate Executive Director
North Shore Child and Family Guidance Center
Roslyn Heights, New York 11577-2215
Andrew Malekoff is Associate Executive Director for North Shore
Child and Family Guidance Center. Mr. Malekoff is Editor of the
professional journal Social Work With Groups, a quarterly publication
of The Haworth Press. He is an adjunct professor of Social Work
at Adelphi University School of Social Work, a widely published
author, and an internationally recognized lecturer with 25 years
experience working with children, families and groups. The most
recent of his three books, "Group Work With Adolescents",
has been published by Guilford Press.
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Michael
Morris
Senior Vice President
Community Options, Inc.
1130 17th Street NW, 4th Floor
Washington, DC 20036
Michael
Morris is responsible for innovative program development, technology
research and demonstration, and public policy oversight for COI.
In March 1998, Community Options opened for the first time an office
in Washington, D.C. to influence policy and practice and redefine
possibilities and expectations for individuals with significant
disabilities, family members, policy makers and employers. Mr. Morris
was named the first Joseph P. Kennedy Fellow in Public Policy and
came to Washington, D.C. to work in the Office of Connecticut Senator
Lowell Weicker, as legal counsel to the United States Senate Subcommittee
on the Handicapped. Mr. Morris is a former National Executive Director
of United Cerebral Palsy Associations and served in various capacities
with UCPA during his fourteen-year tenure. His leadership efforts
have put a national focus on needed assistive technology and its
essential role in accommodating people with disabilities in the
areas of employment, education, housing, communications and daily
living.
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Dawn B. Oakley,
M.S., O.T.R
Director of Rehabilitation
St. Mary's Hospital for Children
29-01 216th Street
Bayside, New York 11360
Dawn
B. Oakley is the Director of Rehabilitation at St. Mary's Hospital
for Children. She has been providing hospital and homecare based
services to children with varied diagnoses for six years. In addition
to possessing a bachelor's degree in Social Work and a master s
degree in Occupational Therapy, Ms. Oakley is also certified in
Sensory Integration.
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Lisa
Rosano-Kaczkowski
TRAID Resource Coordinator,
New York State Office of the Advocate for Persons with Disabilities
One Empire State Plaza
Suite 1001
Albany, New York 12223-1150
Lisa
Rosano-Kaczkowski oversees the operations of thirteen regional TRAID
Centers throughout New York State that provide technology related
assistance and information for persons with disabilities, their
families, service providers and other caregivers.
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Sue
Rosen, B.A., M.S.
Lead Teacher for Computer and Augmentative Communication
The Children s Learning Center
380 Washington Avenue
Roosevelt, New York 11575
Sue
Rosen is affectionately known as The Toy Lady at United Cerebral
Palsy Association of Nassau County, Inc. Ms. Rosen has been teaching
children with special needs for twenty-three years, and is well
versed in the areas of computers in the classroom, adapted technologies,
special education and play.
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James
E. Seath
President and CEO
The ARC of Bergen and Passaic Counties, Inc.
223 Moore Street
Hackensack, New Jersey 07601
James
E. Seath is President and Chief Executive Officer for The ARC of
Bergen and Passaic Counties located in Hackensack, New Jersey. In
addition to his role with The ARC, he is an Administrative Consultant
for the Commission on the Accreditation of Rehabilitation Facilities
(CARF) in Tucson, Arizona. A leader in the field of developmental
disabilities and vocational rehabilitation, Mr. Seath also serves
as Vice Chair of the Passaic County Council on Disabilities and
numerous advisory councils and planning committees in the Bergen-Passaic
area.
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Edwin
Simpser, M.D.
Executive Vice President and Chief Medical Officer
St. Mary's Hospital for Children
29-01 216th Street
Bayside, New York 11360
Edwin
F. Simpser, MD, is Vice President of Medical Services at St. Mary's
Hospital for Children in Bayside and St. Mary's Rehabilitation Center
for Children in Ossining. Dr. Simpser provides medical oversight
and direction to all of the clinical programs within St. Mary's
Healthcare System for Children. Dr. Simpser's expertise includes
GI/nutrition and comprehensive care of children with chronic illness
and special healthcare needs, including high technology dependent
children. He has particular interest in children with HIV, cancer,
gastrointestinal problems and neurologically impaired/ developmentally
delayed children.
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Joan
Tanenhaus, M.A., CCC/SLP
Technology for Language and Learning
5 Tameling Road
East Rockaway, New York 11518
Joan
Tanenhaus is Founder and Executive Director of Technology for Language
and Learning, an internationally known non-profit organization dedicated
to advancing the use of technology and computers with children and
adults with special needs. Ms. Tanenhaus provides computer and technology
consultant services to numerous organizations and agencies in New
York. She is also an Adjunct Professor at C.W. Post College in Brookville,
New York.
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Carol
Tytler, MA, CCC/SLP, ATP
Director of Diagnostic, Clinical and Assistive Technology Services
Enable
1603 Court Street
Syracuse, New York 13208
Carol
Tytler is a Speech-Language Pathologist, and the Director of Diagnostic,
Clinical and Assistive Technology Services at Enable in Syracuse,
New York. She is RESNA certified as an Assistive Technology Practitioner.
Carol has over 17 years experiencing specializing in augmentative
communication and other forms of assistive technology. She is an
adjunct instructor in the Communication Sciences and Disorders graduate
program at Syracuse University. Ms. Tytler is involved in overseeing
all clinical, therapeutic and technology related services to the
more than 1,000 persons that participate in services provided through
Enable.
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Louis
Zimmer, Ph.D.
Supervising Neuropsychologist
Department of Psychology/Traumatic Brain Injury Services
United Cerebral Palsy Association of Nassau County, Inc.
380 Washington Avenue
Roosevelt, New York 11575
Dr.
Louis Zimmer's clinical expertise is in the field of neuropsychology
with the assessment and treatment of cognitive problems in children
with both developmental and acquired disabilities, the later as
the result of injury or exposure to toxic chemicals such as lead.
A practicing psychologist for over sixteen years, he is the former
Director of Neuropsychology at Baylor Institute for Rehabilitation
in Dallas, Texas as well as the former Director of the James and
Sarah Brady Institute for TBI at Jamaica Hospital in New York City.
Dr. Zimmer is currently Supervising Neuropsychologist at United
Cerebral Palsy Association of Nassau County, Inc. where is provides
direct clinical care and consultative services to persons with traumatic
brain injury.
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